About Us

  At age 7, my daughter was diagnosed with Dravet Syndrome, a rare, lifelong form of epilepsy causing prolonged seizures from infancy. Despite enduring over 15 hospitalizations due to prolonged seizures, we persevered through numerous appointments and test, eventually discovering the optimal medication blend for seizure control.  As a parent, Shakira's future is a constant concern. Despite her seizure disorder and developmental hurdles, she finds joy and purpose in small ventures like volunteering helping in the family business selling t-shirts, dog apparel and more.  Join us on this journey, supporting us as we aim to cultivate a sense of usefulness and self-esteem.  Every day, we encourage her to persist because there's hope for those battling Epilepsy.